Yesterday

An interesting experience. Past infusions were in a hospital setting as an outpatient, with a nurse right there for the whole thing. This experience began with the stuff being delivered the night before (14 bottles of the infusion mixture take up a large part of a small refrigerator), and the nurse showing up in the morning, starting everything, then leaving. That would have been okay, except the line clogged up mid-afternoon, and again in the evening and I had to flush the line and put new tubing into the system. When I called the company to ask for help with the problem, they didn't send the nurse back over, they gave me DIY directions over the phone..and sounded somewhat annoyed that I had disturbed them with the call. Even after replacing the tubing and flushing the line, it ran slowly, so I didn't get done until 1 a.m. I had been told it would be done between 3 and 4 pm in the afternoon, so it was a definite downer. Thank goodness for PH, who was there all evening and night, putting up with me whining about how sick of it I was. And thank goodness for my friend K who sat with me most of the afternoon, and L who brought dinner. I am blessed.

Hopefully, today will be easier. We won't have the bottles, just one big IV bag, so that sould make it a little bit less of a pain. I hope there's a way to improve the flow so it doesn't take so darned long. PH will be with me for some of the day, then C will come over and hang out, and W, who's a nurse, will come over to take out the IV.

No, the infusion company doesn't send the nurse back to take out the IV...bizarre. I don't think I'll do it this way again. Better yet, I'd like to never have to do it again, period.

The good news is, though tired, I feel pretty good. Thank you, Lord.